The creation of Spokane
Smiles began from a personal experience of mine. When I found
out I was going to have a cleft affected child, I didn't know where
to turn. My pursuit for knowledge finally led me to websites
and medical professionals who had some answers to my questions. I
also met families who were willing to share their experiences with
me.
I began to wonder what other
families did when they learned their child would be born with this
birth defect? Did they have to fumble through names, numbers
and websites to get the information and support they needed? I
thought about how much I wanted to talk to someone when we first
found out our child had a birth defect, yet I had nobody to reach
out to who could possibly understand the despair we felt. It
was after we met with a local family, sharing our fears and
concerns, when I felt that things just might be alright.
I began to realize there was an important piece missing from the
local cleft team approach; the connection to other families facing
similar challenges. After traveling to Chicago to a CleftAdvocate
Parent Connections Conference, I decided to take on the challenge of
building a community network of
families who could be a support for each other as well as new
families of cleft affected children in the Spokane area.
The Mission of Spokane
Smiles is to offer families, whose lives have been touched by cleft
lip and palate and other craniofacial anomalies, the following:
- Encouragement- Creating
a network of families who have personal experience with issues
associated with cleft lip and palate. These families help
to provide a safe haven for parents and children to ask
questions, express feelings and to show emotions in times of
need and fear.
- Education- Ensuring
that parents know that there is an established Cleft Team in the
Spokane area and putting them in touch with the local Cleft
Coordinator. Providing literature about cleft lip and
palate and Spokane Smiles to new parents and local medical
providers.
- Empowerment- Giving
parents and children the confidence and tools they need to
advocate for the best care and treatments that are offered by
the medical community.
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